It’s been a while, and so much has happened… Iz is now almost 15 months old 😱. In the last couple of weeks, she’s taken her first wobbly little steps and has added a fair few new words to her repertoire. Which brings me to today’s topic: “Is she walking yet?” You know that question.… Read more: Is she walking yet?

I’ve been a bit (very) quiet on the posting front recently as we’ve been getting to grips with all things Iz poop. Some days we have lots and some days we have none… it’s tricky to get it right. Awaiting a follow up appointment with Iz’s surgeons and hoping we’ll get a little more support… Read more: Getting into the swing of things

In just two weeks, things have taken quite a turn. Yesterday, I reached out to the hospital we’re under care with for advice regarding a couple of issues we’ve been facing. Iz, has been struggling with constipation. While it’s not severe, it’s causing her quite a bit of discomfort. Today, I spent 45 minutes trying… Read more: The dreaded constipation

14 Days Post-Reversal Op! What a two weeks it’s been! Iz is doing well, and we’re surviving. The main thing is that we’ve made it through. I’ll do a separate page for each operation, detailing all the ins and outs, when I get the chance. For now, it’s all about repeat nappy changes while Iz… Read more: I GOT MY NEW BUM… one that I can poop from!!!

Our son is 10, and he doesn’t share well – never has. He gets that from me 🤣. As a 40-year-old, I still have my own set of coloring pencils because, well, people just disrespect pencils, and I can’t handle it 🤣. I should probably mention that I’m a stationery freak, not just a complete… Read more: Best big bro

Today’s been hard, getting up, getting dressed, getting out, functioning… today has just been hard… the tears keep coming and I just keep holding my girl,,, I don’t want to let her go… I’m so so terrified. Terrified of losing her, of the op, of her being in pain, of it not working, of her… Read more: The tears are coming thick and fast…

So, it finally happened—I managed to get some sleep last night and feel much better. I’m trying to walk every day to keep myself sane, and I’m also planning my meals so that, when we go in, I’ll hopefully be at the top of my game, ready for potentially five or more nights of little… Read more: Finally got some sleep

Pre op insomnia seems to have hit. Iz had an unsettled night last night and tonight my brain just won’t shut off so I’m running on absolute fumes. Hoping at some point very very soon I’ll splat and get at least a little sleep otherwise I’m not sure how I’ll manage to get through tomorrow!… Read more: Can’t catch a Zzz for love nor money

How can you tell Iz’s surgery date is getting closer? I have no less then 16 lists on the go in 4 separate to do pads!!! 16 🥴🤦🏻‍♀️ What on Earth is wrong with me! Lots to organise, feeling the pressure, feeling out of control… trying to keep focussed on what I need to do… Read more: Lists

Today, I finally received the text with the date for Iz’s operation. It’s amusing, really—I’ve been waking up each morning for the past few weeks, telling myself, “Right, today I need to put my phone on loud; they’ll call with the news.” Then, almost immediately, I feel that familiar wave of anxiety wash over me,… Read more: Op date

It’s been a while since my last update, so I wanted to share the latest on Iz’s journey. Lately, it feels like we’ve been in a bit of a waiting game. We’re currently in the midst of weaning, which has been an exciting adventure! Iz is sitting up, scooting around on her back and tummy,… Read more: It’s been a minute

As we are deep in the delightful journey of anal dilations, I suddenly realize we’re running critically low on lubrication gel. In a moment of panic, I turn to my husband and confess, “I should have ordered a bigger tube! I mistakenly got the tiny one!” “No worries,” he says, “I’ll just swing by Tesco… Read more: The Joys of Anal Dilations and the Weekly Food Shop

Today, I wanted to address a topic that is close to my heart: mental health. It may seem strange since this blog is for now essentially for myself and not yet shared with anyone. At some point there will be a dedicated page about mental health and my journey since Iz was born, I wanted… Read more: It’s just love

I received a call from the Stoma nurse today to check on the rescheduled date for my Iz’s surgery (This isn’t through yet). Iz has been experiencing some unexpected mucus poops since before Christmas, which I found concerning. Due to her condition, all waste comes out of her stoma, so any bowel movements are significant.… Read more: No date yet

Well, today we made the decision with the help of a lovely lady from the pre-op assessment team to postpone Iz’s Reversal operation, which was scheduled for this week (9th Jan 2025). We’ve all had the flu, and Iz is still coughing. While she seems okay in herself, we don’t want to risk any complications… Read more: No Go

Iz is just over 6 months old. My husband and I are full of cold and hoping, beyond hope, that we don’t pass it on to the kids… Especially Iz. Her op is scheduled a week today, and having already been cancelled, we really hope to not be delayed again. Of course, if the time… Read more: Hello World!