No Really…
I need a new bum; a designer bum; one that I can poop from, that kind of bum!
This is not in any way related to the books, this is just my story about my journey with my baby girl and her designer butt!
Category: Uncategorised
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Bugs galore
It’s been a crazy few weeks, and we’re just coming out the other end of it. First, we had the half-term sick bug hit three of us, including Iz, and she’s still having some lingering issues from that. Then she started nursery and, in her very first week, picked up hand, foot and mouth, while… Read.
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Last Bag Milestone
A year ago today, we changed Iz’s last colostomy bag before her reversal.I spent that day paralysed by a terror I couldn’t even name. I might have looked like I was holding it together, but underneath, I was a broken, heartbroken Mumma just trying to breathe through the fear.The days that followed that surgery were… Read.
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Settle in sesh 1…
Iz started nursery today… and by started, I mean she had a settling-in session. We went with her for an hour, and then she stayed for an hour by herself. She did great. We did great. It all went well. I expected nothing less from the nursery — they had our son — but with… Read.
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It’s a big week
It’s Monday evening and I’ve barely slept the last few days. Iz has had a couple of good nights, but my mind just doesn’t switch off sometimes. Iz is asleep now. It’s just gone 9pm and I should really try to sleep too — especially after only a few hours last night and just two… Read.
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Cardio App Cancellation (Or Not)
We’ve had Iz’s cardiology review booked for late April for a while now. It’s been sitting in the diary — one of those dates that quietly hums in the background of your mind. Today I opened the post to a letter cancelling it. The sick feeling was instant. Heavy. I hadn’t realised quite how much… Read.
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The Plague
I’ve always been a bit germ-phobic, but since Iz’s surgery days I’ve basically been operating at lab-sterile levels of unhinged. My hands still haven’t recovered from the near-boiling washes and industrial hand sanitiser. We were sterilising until she was 18 months old (she’s now 20 months)… which makes it particularly ironic that she will not… Read.
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Not a one off
Textured pouch isn’t a one off… we are there… slowly but surely… now we just need to crack drinking enough water from a receptacle that isn’t a baby bottle… still… water intake is important for anyone but for Iz, on movicol daily it’s more important. Movicol draws water into the bowel, this softens poop so… Read.
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Textured Pouch smashed
Our Iz at 19-months-old ate a 7+ month textured pouch from start to finish, and my heart could burst with relief and pride. This has taken so much time, patience, and gentle perseverance. Only yesterday we had another frightening silent choking episode with finger foods, so today’s progress feels nothing short of amazing. Watching the… Read.
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Still no sleep
Iz was at my mum’s. She loves it there, and it’s meant to give us a break — a chance to sleep. I also got to spend some time with my boy, which was magical. Then bedtime rolled around, and even when she’s not here, I can’t sleep. Right now, I just can’t sleep. It’s… Read.
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In the dead of night!
It’s been such a long time… Iz is 19 months old now, and she’s doing so well—so well that we’re planning for her to start nursery next month. And yet, here I am, still awake past midnight. The fear comes in waves. I’m not sure it will ever fully go away. I’m scared for the… Read.
I Need A new bum 